THE daughters of a Stallingborough woman who died of a rare disease are determined to raise better awareness of it. They hope the story of their mother's battle with Progressive Supranuclear Palsy will help others to understand it better. Diagnosis took four years, and early symptoms include the loss of balance leading to unexpected backward falls, eyesight and walking difficulties.

As the days go by, those suffering with the disease have increasing problems with swallowing, and speech becomes slurred.

Other symptoms include choking, the loss of the ability to communicate, and dry eyes. A sufferer's brain is the last thing to be affected.

Other symptoms include dry eyes, choking, and increasing difficulty with swallowing.

Speech becomes slurred and eventually there is an inability to communicate. A sufferer's brain is the last thing to be affected.

Grimsby Telegraph reporter Paul Smith found out more - read the full story in today's edition.